Below is an email that I sent out yesterday evening, we have been rocked to the core, are still waiting for answers and know that our baby girl is a fighter and will get through this with us behind her every second.. that along with the prayers and well wishes from so many people we will make this part of our past.
To some I am sending this with updated information, to others this is the first of hearing it but all of you are important people in our lives and we need your support now.
Last week we noticed that Georgia's knee was bothering her, Monday we saw her doctor and thought it was just a pulled muscle but came to Children's hospital to get an xray to rule out something like a hairline fracture. The radiologist instead found what was either an infection or a tumor and sent us straight over to the ER to get further testing done. I was blown away thinking I was going to just be sent home to ice her knee.
After arriving in the ER more tests were done and they ruled out the possibility of infection which left us with a tumor. All of a sudden people were throwing around words like "the oncology team" and "cancer". Needless to say we absolutely could not believe what we were hearing. Later that night we were admitted to Children's. Yesterday Georgia has a CT scan and an MRI to get a better look at what has been called a large tumor on her femur (just above her knee).. there also appears to be a hole in the bone. From those tests we went from "if" cancer to "what kind" so today she had surgery to biopsy the tumor and also take bone marrow as well as a skin biopsy as they think the rash she has been dealing with might be tied into all of this. They said that the surgery went well but it will still be a few days before we know what we are dealing with but it is a malignant tumor.. not the news we were hoping for.
We have an orthopedic team, a oncology team and a few other docs in between. I still can't comprehend that we are on the SCCA floor of Children's. It is hard to try and figure out what she might have because one doc is somewhat certain it is one thing than another is certain it is something else.. not matter what it is we were told last night by an oncology doctor that we WILL deal with this and make this a part of Georgia's past. After our latest meeting with the oncologist she said that they are about 99.9% sure this is malignant and will require some sort of chemotherapy (and or radiation) and likely another surgery.
Our feisty girl in true fashion is mad as hell when they check her vital signs, take her blood or really when she sees anyone in blue scrubs. Today after surgery the recovery room called our nurse to have me come and calm her down because she was so mad when she woke up.. they tried to give her a bottle and first she turned her nose up at it.. on the second try she took it and threw it on the floor! It is going to be this spirit - the one that we saw right from birth that is going to get her through this.
We need and so appreciate all of your thoughts and prayers and that you are all so willing to help. Right now we are waiting for more answers and making it through the day .. right now the best thing that all of you can do is to continue to send love, prayers and positive thoughts to Georgia.
i will send updates as we have them, hope to know more in the next couple of days.
Love,
Alison, Brian & Georgia
I am so incredibly sorry you all are going through such an awful thing. Know that we are all praying you and sending so much love your way Georgia!!
ReplyDeleteWe miss seeing you both. Our weeks are not the same without seeing you: having lunch, going grocery shopping, taking walks. Tell G to get better. Charlotte misses her best buddy!
ReplyDeleteSending all the love possible your way.
Kisses to you all.
Meredith, Jay and Charlotte