Thursday, October 28, 2010

At midnight tonight Georgia will get her last dose of chemo for AML. The past 10 days have been quite a journey and I am feeling relieved to be at the tail end of this chapter.. we are now going into a phase that the nurses affectionately call "AML Jail." This is the phase where we watch her white blood cell and ANC levels drop to zero then start to rebuild, this is the phase where Georgia will simply not have an immune system. The jail part is because we are not allowed to leave the SCCA unit, so we are here to just wait. Although this will be our last dose of chemo the next week is still a sensitive time as her body will still be dealing with the side effects of this treatment, we will be watching for mouth sores, fevers and any sign of infection.

I am so glad that I won't have to watch the nurses suit up in their chemo garb putting on a mask to cover their mouth that has a plastic shield to protect their eyes.. this while they are accessing a line that is connected directly to my baby's chest.

The next couple of weeks will tell us which direction we will head next, once her ANC level is back to 200 she will have an MRI on her leg to see if the tumor is gone.. if it is and we have a donor match we will prepare for transplant. If we are going straight to transplant it is my understanding that we will go home for a couple of weeks but staying in close contact with the SCCA to do a battery of tests. If the tumor is still sizable they will likely want us to do another round of the AML treatment which would mean going home for a few days then essentially repeating what we've just done.

Georgia continues to amaze me.. her weight is up, she hasn't been sick in days and she has doctors coming by just to see her wave and smile. She is comfortable here now, she doesn't cry at the sight of a nurse, she is easily distracted during daytime vitals and will most of the time sleep though the nighttime vitals. This eases my stress and makes me sad all at the same time.




Our portable in room "spa"

2 comments:

  1. I am happy that she is less disturbed by the goings on. It must be a great relief to you. When our children cry it distresses us and the fact of your situation makes it that much harder to bear. Georgia looks good Alison. You and Brian are the greatest parents on the planet! Keep up the the good fight! We are here for you.

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  2. You both look amazing inspite of all that you are enduring. The fact that she is comfortable there is a big sign that she knows she is in the right place to get healthy and that you are there with her every step of the way. We are all thinking about you guys.. every day. Hoping that nasty tumor has left the building!! Go Georgia

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