The words Home Sweet Home have never rung so true. What a day - Just after 7am I was woken up by the resident oncologist whispering Mrs. Handsaker... I looked at her a little startled and she said I just wanted to tell you the good news, Georgia's labs just came back and she's over 200. I wanted to leap out of bed and hug her! A few minutes later our nurse came in and told me that not only had she met the 200 mark, she jumped from 68 to 240.
We were up and going, peeling down the dozens upon dozens of cards that I had posted in our room, packing up so many wonderful toys, food and lots of paperwork. My dad came to help move us home because Brian is on a trip. He passed a volunteer in the lobby and she commented on how much stuff he was hauling out, he said, yes, they have been her for almost six weeks... she said, are you sure it wasn't six years?!
After rounds were done, we'd met with the pharmacist the social worker, child life specialist and nurse we were free to go. When I walked to the doors of the SCCA unit where we'd said goodbye to daddy several times I looked at Georgia and pointed to the door... she pointed too. This time I got to push the button and we BOTH walked out.
Leaving was a little emotional, Georgia was outside for the first time in weeks, I strapped her in her car seat and we were on our way home. She was so tired that she fell asleep. Once we were here I took her inside and straight to her room in hopes of getting her back to sleep.. no such luck. She looked around, then looked at me, and looked around again. I showed her the house and she seemed to remember, pointing in the direction she wanted to go.
My dad helps us move back in, re-cleaned the floors in an effort to keep me sane and we celebrated with two beers and one sippy cup.
After he left I locked the door behind him, turned on the music and danced around the living room with Georgia and started to cry. The magnitude of what we have been through is just starting to seep in. When Georgia and I first got home there was a glimpse of a second where I thought, was this all just a bad dream? We have come a long way in nearly six weeks and have a rough road ahead but we will conquer it just the same.
Last night the quiet was almost loud, no nurses station, no IV beeping, just peace. We both slept well and were so happy to wake up here this morning... we made breakfast, I had coffee all while in the comfort of home.
We will have clinic visits twice a week to keep an eye on her blood counts and either late next week or early the following we'll have another MRI and bone marrow aspirate - just like for her ANC we need all of the prayers and positive thoughts that the tumor in her leg is gone so we can stay home until transplant. Today I will start flushing her line, giving her meds, taking her temperature twice a day and keeping her in the most germ free environment possible. I will need to find a balance between being paranoid about germs and keeping Georgia safe, but as my dad said last night in this situation there really isn't a way to be too safe.
Oh, this post has me crying happy tears! :-) Praying you can stay home as long as possible! There just is no place like home! {hug}
ReplyDeleteyes.. the tears... I am so glad you are home at last! Hooray for Georgia!!! Prayers will be continued from everyone I am sure. Now remember who lives next door and is willing to do anything you need. I will go to the store, make food, I have cookies for you all, sweep the porch... I will do anything you need. How you doing on diapers? Costco run tomorrow!!
ReplyDeletetears of joy for you here too! I can't begin to imagine the roller coaster you have been on and am so happy to hear that you are home. prayers that everything will continue to move quickly towards recovery!
ReplyDeleteDitto Helmick! Tears of joy were shed for you both. There is nothing like home sweet home! This is the best news I've heard for a long time!
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