Yesterday we were discharged from Children's, happy to be home yet still feeling on edge about getting things settled down again. We're working with our Children's docs and those at the SCCA on new plan for meds, weight gain and moving forward.
Tonight I am writing from home, thankful to be here but incredibly sad because I just read that today the world lost the sweet girl I'd talked about just a few short days ago. Sometimes, more often these days then ever before, this world doesn't make sense to me.
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