High, Low and Farewell

When I joined a PEPS (mom's) group we would start each meeting with our "highs" and "lows"... our last 24 hours in the hospital brought one of each. Georgia officially took her first step toward her daddy on March 22nd - definitely a high for all of us. Later that night the nurse hooked up her TPN, an hour or so later we discovered a leak in the "filter" that is used in the tubing... if the TPN can get out, bacteria can get in. Here we were all set to leave the next morning and they are taking blood cultures to check for infection. All of the doctors and nurses that talked about it said they'd never heard of that problem before.. go figure. Two days later and noting has grown back but we are still keeping our fingers crossed as it can take days.

This last stay was hard for me and our nurses knew it.. during transplant one of our favorite night nurses asked, knowing Georgia loves music, if we'd ever heard of Casper Babypants.. we pulled up his website and played his music all through transplant, Nana brought G a CD and we now sing his songs all of the time. When we were readmitted this same nurse said I should contact him to see if he'd come play for Georgia, exhausted I looked at her and said, ya right.. she said no really, why don't I do it? I said go for it. The next day she did and he wrote right back saying he'd be happy to come play for Georgia. About an hour before we checked out of the hospital Chris singer for the band Presidents of the United States and Casper Babypants himself came to our room and played for us. Georgia loved it, I mean really loved it - dancing, clapping and asking for more. Thank you to our fantastic nurse for setting this up and to Chris for performing what we hope will be our farewell concert.

Front row seat

Dancing to the music with Hunter

Checking out the guitar after the concert

More dancing

Thank you Casper!