Day +43

Life at home is well, utter chaos right now. We are trying to move back into our house while trying to get ourselves into a routine. I have five different alarms set, three on my phone two on an alarm clock to keep us on schedule with Georgia's medication. Giving TPN over 15 hours means that she is awake for several hours while it is running which means following her around with the backpack that houses the pump and fluid... the first night the pump malfunctioned early in the morning but so far pump number two is working alright. We are trying to figure out a schedule with the SCCA to do blood draws for electrolyte and tacrolimus levels, clinic appointments and to pick up her TPN which is not ready until between 4-6pm the day after it is ordered... so far this has meant going to the SCCA daily. In between running around we are cooking anything we think Georgia might eat then cleaning up, then cooking again... oh and trying to get a nap in here and there too. All this while keeping everything cleaner than clean because as we knew and were reminded at our first clinic appointment, Georgia has less of an immune system than she had the last time she was home... to top it off our washing machine broke. There is not a minute in the day where I don't feel like something needs to be done and the pressure of the voice in the back of my head that says, don't screw this up. We will get to a place that some of this becomes second nature but we're not there yet.

What really matters:

Cytogenetics - all donor cells

Peripheral smear - no blasts

Chimerism study - 100% donor

Tri Lineage - all donor cells


And Georgia, she is visibly so happy to be home.