I realize I haven't given much of an update about Georgia's skin, to be honest there isn't much of one. After our trip to the dermatologist we've certainly been more on edge but after several conversations, the decision at this point has been made not to do a biopsy.
I talked with our oncologist and her feeling is that even if this is JXG that Georgia's lab work outweighs anything that may be on her skin. She said, with monthly labs and appointments, we're watching her like a hawk. She did contact the woman who is considered the "world expert" on JMML to see if she'd ever heard of a recurrence and if that was or was not linked to a recurrence of disease. Two other JMML doctors weighed in, and the only time they had seen a recurrence was when the patient had a genetic condition called NF1, something Georgia has tested negative for.
At this point we are trying to stay positive and looking forward to putting our next SCCA appointment behind us. We've got another week then it's time for labs and appointments, although several of the spots on her skin have been there for months, this appointment seems to carry more weight than the last few.
As always, positive thoughts, vibes and prayers are welcome and appreciated.
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