Go Team!

Last week we visited the SCCA for a monthly appointment, something I'd been anticipating for weeks.  I always try and gauge how her labs are based on the demeanor of the people we meet with before we see our doctor and PA, it's not a trusted method but one that's hard to break. 
First up, the pharmacist, there was a lot of crossing out on Georgia's med sheet, she is now only on supplements which feels fantastic!  Next up, the dietitian, it's amazing what a difference a year makes... a year ago Georgia had a feeding tube, last week we were discussing how she is such a good eater.  I used to  dread the walk to get her height and weight, now I find myself looking forward to hearing the results.  The scale doesn't lie, a reading of 13.6kg had everyone smiling, she has jumped from the 25th to the 50th percentile for weight in just about two months.  Next she stood against the height measurement, feet together, standing tall, chin up... the dietitian looked at the number, then at her chart and said, "wow, really?... let's measure again to make sure this is right."  Sure enough, Georgia has grown 3cm since our last visit and jumped up from the 10-25th to the 25-50th percentile for height!  We're regaining some ground and Georgia sits nicely on a chart that is compared to the average (almost) three year old.
Then the time had come, in walked our PA and doctor, both smiling as came in... Georgia wore her Halloween costume to her appointment, it lightened the mood and brought some much needed cheer to the transplant floor of the SCCA.  They both remarked at how Georgia isn't a baby any more, she's a little girl and looks great - something her mother never gets tired of hearing. 
The labs looked fine and the topic of skin quickly came to the forefront.  Her transplant doctor believes there is a good chance the various spots, some "JXG-like" some not, are mild skin GVHD.  He said that she is doing really well seven weeks off of immune suppression but that her immune system is still finding a balance and this could very well be the result.  His feeling is that her skin needs to be watched but unless we see spots that come, stay and grow there is no need to do a biopsy and wouldn't treat mild skin GVHD.  So for now, we're off the hook until late November for our Children's appointment, assuming all goes well then we will be back at the SCCA in January for Georgia's two year post transplant work up, slow and steady, we can do this.

Three cheers for a good appointment!