Day +74

Six months ago today was the last day that I would consider my life normal. Six months ago tomorrow Georgia and I swung by Children's Hospital for a quick xray, we waited in a little room for the go ahead to go home, instead someone came in and said it looked like she had an infection or tumor in her leg then we were walked straight over to the Emergency Department. I mourn the loss of life that was normal, it will get better in time but will never, ever be the same.. my worry will always be a little more than the average mom and I imagine I'll cry a little harder at her pre-school and college graduation. What we know today:

• JMML is a rare form of leukemia and accounts for 1-2% of childhood leukemias each year; this equates to about 3 cases per million children.


• About 80% of JMML patients have some sort of genetic abnormality in their leukemia cells that can be identified with laboratory testing - Georgia has tested negative for all genetic tests that have been offered.


• Boys are effected by JMML more often than girls.


• JXG (Georgia's skin condition) Due to its infrequency and misdiagnosis it is hard to get an exact number but it is estimated that skin JXG attacks 1 in a million children.

I think about what a million people looks like - Quest Stadium holds 72,000 so take 14 Quest Stadiums and ask three children to step forward, this is JMML... that's insane.

Georgia has been to hell and back through this process and so have we, we still have a long way to go and still have a lot of unanswered questions but our daughter is simply remarkable.