Saturday, April 9, 2011

Day +81

Things here have been busy, aside from the regular visits to the SCCA I am told that I am raising a normal 16 month old... she's testing her limits. Overall I definitely celebrate this, in the moment... well that's another story. I am working on defining how we will do discipline at this young age. Georgia is feisty.. and smart, she knows what she wants and isn't afraid to go after it but figuring out how to communicate what is appropriate while knowing there is a caveat.. she is on low dose steroids is challenging. It's a work in progress but is also exciting to see her learning right before my eyes.
This week Georgia had her Day 80 bone marrow aspirate and biopsy as well as a skin biopsy and chest xray. We are hoping and praying for the same results we had at the Day 28 tests.. 100% donor, no blasts, no abnormal cells. Friday we had our Day 80 clinic check up, from all exterior signs Georgia isn't showing any signs of chronic GVHD. Her eating has picked up and our last two visits have shown weight gain.. we need to get her to 10kg (22lbs) before they will take her off of TPN but we're closing in on that.. she was 9.87kg on Friday.
Next week one of our visits is a follow up dental exam.. they said beforehand that transplant can delay dental development... Georgia has had six new teeth pop through since that visit.. this girl is unstoppable!

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