Monday, September 5, 2011

Day +228

Tomorrow is going to be a long day.. someone is coming to the house at 10am to teach us how to use the pump for the NG feeds, we have to be at Children's by 12:45pm and Georgia is scheduled to have an MRI at 2pm, this typically takes close to an hour.. after she's done and awake we have to go up to the clinic for an hour long teach on caring for the NG tube.  All the while Georgia can't eat beforehand and likely won't feel like eating afterward.  Brian and I are both sad about the NG tube but I think we're both more scared of something new.  It's time to solve this weight issue so we'll manage this new addition. Georgia was patting her chest (where her central line was) last night saying ba-bye, I told her she was going to get a different line and it was going to be in her nose.. since then she keeps looking at me touching her nose and saying, nose?  It breaks my heart that she has to again rise to the challenge but she will, it's what she does. 
What we need to do is focus on the major hurdle of getting another "healthy, healing" MRI - Georgia hasn't been giving me any indication that she has discomfort in her leg but MRI's are terrifying just the same.  Please send thoughts and prayers for a healing leg with healthy cells.


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